1. Introduction

Welcome to the website of the Registry Study of Blood Donor and Recipient Long-Term Outcomes, hosted by Johann Wolfgang Goethe University Frankfurt. We value your privacy and are committed to protecting your personal data. This privacy policy outlines how we collect, use, and protect your information when you visit our website.

2. Data Controller

The data controller responsible for your personal data on this website is:
Johann Wolfgang Goethe University Frankfurt
Theodor-W.-Adorno-Platz 1
60323 Frankfurt am Main
Germany
Phone: +49-69-798-0
Email: webmaster@uni-frankfurt.de

3. Data Collection

We collect personal data that you voluntarily provide to us when you:

  • Contact us via email or through the contact forms on our website.
  • Subscribe to our newsletters or other communications.
  • Participate in our studies or surveys.

The types of personal data we collect may include:

  • Name
  • Email address
  • Phone number
  • Postal address
  • Any other information you provide to us.

4. Use of Personal Data

We use your personal data for the following purposes:

  • To respond to your inquiries and provide you with information about our study.
  • To send you newsletters and updates if you have subscribed to them.
  • To conduct and manage our scientific research studies.
  • To comply with legal obligations and regulatory requirements.

5. Data Sharing and Disclosure

We do not sell, trade, or otherwise transfer your personal data to outside parties except as described below:

  • Service Providers: We may share your data with third-party service providers who assist us in operating our website, conducting our research, or servicing you.
  • Legal Compliance: We may disclose your data to comply with legal obligations, respond to lawful requests from public authorities, or protect our rights and safety.

6. Data Security

We implement appropriate technical and organizational measures to protect your personal data against accidental or unlawful destruction, loss, alteration, unauthorized disclosure, or access. However, please be aware that no security measures are perfect or impenetrable.

7. Your Rights

You have the following rights concerning your personal data:

  • Access: You have the right to request access to the personal data we hold about you.
  • Rectification: You have the right to request the correction of inaccurate or incomplete personal data.
  • Erasure: You have the right to request the deletion of your personal data under certain conditions.
  • Restriction: You have the right to request the restriction of processing your personal data under certain conditions.
  • Objection: You have the right to object to the processing of your personal data under certain conditions.
  • Data Portability: You have the right to receive your personal data in a structured, commonly used, and machine-readable format and to have it transmitted to another controller.

To exercise any of these rights, please contact us at webmaster@uni-frankfurt.de.

8. Cookies and Tracking Technologies

Our website uses cookies and similar tracking technologies to enhance your browsing experience, analyze website traffic, and understand where our visitors are coming from. For more information about our use of cookies, please see our Cookie Policy.

9. Third-Party Links

Our website may contain links to third-party websites. We do not control and are not responsible for the privacy practices of these websites. We encourage you to review the privacy policies of any third-party sites you visit.

We use Canva to create and create images and designs on our website. Canva’s privacy practices are described in their privacy policy: https://www.canva.com/policies/privacy-policy/

10. Different Rules for Study Participants

Please note that this privacy policy applies only to the data collected through our website. If you are a participant in our studies, different rules and protections regarding your personal data apply, as outlined in the Informed Consent Form (ICF) provided to you. The ICF details how your data will be collected, used, stored, and protected during the study.

11. Changes to This Privacy Policy

We may update this privacy policy from time to time to reflect changes in our practices or legal requirements. We will notify you of any significant changes by posting the updated policy on our website. Your continued use of our website after the changes take effect constitutes your acceptance of the revised policy.

12. Contact Us

If you have any questions or concerns about this privacy policy or our data practices, please contact us at:
Email: webmaster@uni-frankfurt.de
Postal Address: Johann Wolfgang Goethe University Frankfurt, Theodor-W.-Adorno-Platz 1, 60323 Frankfurt am Main, Germany