The LOS Transfusion Registry is set to revolutionise data collection in transfusion medicine over the next 30 years. Our platform offers a sophisticated, digital and scalable solution tailored to the specific needs of this important field. We ensure that all data is captured to the highest standards of integrity and security. Our advanced technology guarantees that data is standardised, accessible and interoperable, enabling seamless collaboration across Europe and globally. Researchers, doctors and patients can trust our platform to deliver secure and reliable insights. With our innovative approach, we aim to support long-term research and ground-breaking discoveries in transfusion medicine and ensure a safe and progressive environment for all users.
Data collection process
Initial data entry:
- Patient data is initially entered by medical staff via a standardised and user-friendly system to ensure accurate documentation and reporting.
- This includes detailed personal and medical information, which is pseudonymised to improve data protection and confidentiality.
Annual follow-up:
- Registered patients receive annual health and wellbeing surveys via email or SMS. These surveys are designed to be quick, easy and secure, ensuring consistent and comprehensive data collection over time.
- In this way, long-term health outcomes and new diagnoses, interventions or treatments are captured.
Ongoing data integration:
- The data collected will form a large interoperable dataset that will be used for further research and analyses.
- Once a statistically significant data set is available, it will be used to develop evidence-based transfusion guidelines and to continuously improve patient outcomes and quality of life.
By integrating these advanced data capture capabilities, we aim to improve the field of transfusion medicine and ensure a safe and advanced environment for all users.
